Care in CrisisIDDT Report lays bare the state of
diabetes care in England
Critical ReportPublic Accounts Committee criticises
diabetes care in England
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We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language.
A charity based in the UK listening to people with diabetes and their carers and supporting their needs. The Trust is run entirely by voluntary donations and we do not accept funding from the pharmaceutical industry in order to remain uninfluenced and independent.
The InDependent Diabetes Trust (IDDT) is a registered charity and was formed in 1994. We are concerned with listening to the needs of people who live with diabetes, understanding those needs and doing our utmost to offer help and support. We not only want to help those who actually have diabetes but also their carers – the husbands, wives, partners and parents, indeed, all of us who ‘live with diabetes’. We recognise that when one person in a family has diabetes, all other family members are affected to a greater or lesser extent and they all have views and needs which may be different from the person with diabetes, but nevertheless are important.
The Trust was set up to look at some of the day to day difficulties of living with diabetes, the worries, fears and concerns that perhaps we don’t talk about at the hospital clinic- the ones that many of us experience and understand because we actually live with diabetes. As a charity, IDDT has a Board of Trustees and all our Trustees either have diabetes or have family members with diabetes. So we all know first hand that while diabetes doesn’t rule our lives, it is an important part of them. It needs care and attention, it can be a nuisance and it is not without it’s problems!
Pomegrate drinks to have added sugar
IDDTâ€™s logo has been on Pomegrate drinks in some of the major supermarkets and we were happy to endorse this drink because Pomegrate was sweetened with a natural fruit extract.
Insuman Basal, Comb 25 cartridges and prefilled pens are likely to be in short supply for the next eight months, according to the manufacturers Sanofi. These insulins are used by nearly 50,000 people in the UK.
GlucoMen LX Sensor test strips
The Medicines and Health products Regulatory Agency (MHRA) has issued a medical safety alert about GlucoMen LX test strips made by manufacturers, Menarini Diagnostics UK.
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The Noctura 400 eye mask is an effective, non-surgical and non-invasive treatment for Diabetic Retinopathy and Diabetic Macular Oedema.
Be aware of high strength insulins
Several new insulins have come to the market recently; three high strength insulins which have concentrations greater than the previously standard strength of U100 and biosimilar insulin.
The Trustees of IDDT have discussed the introduction of different strengths of insulin in depth and strongly expressed their concerns about the risks of errors by people with diabetes, health professionals and hospitals. These concerns come from their experiences of the introduction of the first genetically modified human insulin in the 1980s when there was a dearth of evidence of benefit and many people with diabetes were not informed of the differences from their previous natural animal insulin.
Warning â€“ review of three Type 2 drugs
The European Medicines Agency (EMA) has started a review of canagliflozin, dapagliflozin and empagliflozin, which are diabetes medicines known as SGLT2 inhibitors. This was requested by the European Commission following several reports of diabetic ketoacidosis in patients on SGLT2 inhibitor treatment for Type 2 diabetes. EMA will now review all available data on the risk of diabetic ketoacidosis (DKA) with SGLT2 inhibitors and consider whether any changes are needed in the way these medicines are used in the EU.
Hypo Awareness Program
The Hypo Awareness Program is helpful for people who want to be able to spot and recognise hypo signs and symptoms. It’s also useful if you have already lost some or much or your hypo awareness and is also useful for people looking to prevent losing hypo awareness in future. It’s all about being aware.
Diabetes â€“ Parents Passport For Schools
The InDependent Diabetes Trust [IDDT] is all too aware of the difficulties that children with diabetes and their parents face in everyday life when managing the condition. One area that proves particularly problematic is managing the condition at school. With this in mind, IDDT has produced a new, FREE booklet, the Parents Passport for Schools.
Too many children and young people with diabetes not getting the care they need
The National Paediatric Audit report by the Royal College of Paediatrics and Child Health, March 2015, has shown that in England and Wales only 16.1% of young people aged 12 years and older are receiving the 7 annual checks that every child with diabetes should have. This is a slight improvement from the last audit but still very worrying.
Position Statement â€“ ‘pre-diabetes’
The term ‘pre-diabetes’ has crept into our language and there is debate about its use. People who are at risk of developing Type 2 diabetes are now being classed as having ‘pre-diabetes’ or ‘borderline diabetes’.
The IDDT Lottery
The IDDT Lottery helps to fund the provision of FREE IDDT booklets and leaflets, which means that information about the various aspects of diabetes is available to everyone, regardless of income.
Young diabetics ‘get worse care’
There is an urgent need for effective public health strategies to deal with diabetes, starting with more consistent NHS testing, says Jenny Hirst, Chair of the InDependent Diabetes Trust (IDDT).
People with diabetes not offered dietary advice
More than half of people with diabetes are not offered sufficient dietary advice upon diagnosis, according to a survey carried out to support the healthy eating message of this yearâ€™s World Diabetes Day.
Launch of Passport for Diabetes in Care Settings
The charity, the InDependent Diabetes Trust (The Trust), in partnership with the Institute of Diabetes for Older People (IDOP) and the English Community Care Association (ECCA), announce the launch of their new ‘Passport’ for people with diabetes in care settings.
The Passport is intended to be used in settings such as residential homes to provide carers with vital information about their clients’ diabetes needs.
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Animal insulins continue to be available – statement from Wockhardt UK
IDDT formed to maintain supplies of animal insulins, not only so that this choice of natural insulin remains available for everyone, but especially for the people who have adverse reactions to the synthetic human and/or analogue insulins. We never forget that this need still exists and we know that many animal insulin users worry about the continued availability of the animal insulin they need. Many are often wrongly told that animal insulins are no longer available.
On June 21st 2012 the DVLA issued new guidelines aimed at making it easier for drivers with diabetes treated with insulin to understand the new driving rules to comply with the European Directive introduced in 2011.
LGV drivers unaware of the need to test if they are taking tablets
Driving and hypoglycaemia – what are doctors being advised to do?
The Association of British Clinical Diabetologists [ABCD] has recognised that the EU Directive on standards of driving in diabetes will have a significant impact not only on drivers with diabetes but also on the doctors who complete medical reports for the DVLA. The ABCD has clarified their response to the Directive and this basically advises doctors on their actions with their patients on the most important change – hypoglycaemia. [Practical Diabetes Vol. 29 No1] It seems sensible that people with diabetes know what advice their doctors are receiving, so below are the key points in the ABCD recommendations to doctors.